Monday, January 18, 2010

My Child's Prayer

January marks 3 years for Noah on the Ketogenic Diet. Nope we don't have full control of his seizures. But we went from 150 tonic clonics (status included) each year, to less than 7 in the first year and half of the diet. And now just two in the past year and a half.

I just had to post Noah's prayer tonight exactly the way it sounded...

"Dear Heavnly Fodder,
Thank you for dis day.
Thank you for no seizures in 25 weeks...."

I couldn't be more grateful for the respite. I wouldn't wish this journey through epilepsy on anyone. However, I am grateful for the growth, the learning and the unity that Noah's epilepsy has given to my little family. I am thankful for the lessons in compassion that it has taught my other children. I am grateful for everyday that I have with Noah. I am grateful for the way that epilepsy has taught me to embrace people with special needs. I am thankful that I was the Mom that man needed when he fell because he had a seizure while crossing the street. I am thankful that I was the Mom that the Walmart employee needed when he fell onto the floor having a seizure. I am grateful that God has opened my eyes and my heart and given me a chance to help others. I am grateful for the people who helped us during Noah's seizures. I am deeply grateful for the people in the future, that will, if necessary, be a Mom or a Dad to my son, if he has a seizure when he is full grown and out in the world. I am grateful for the many ways in which epilepsy has changed how I see and experience life.

We are not defined by the events, illnesses or challenges that happen to us. Rather, we are defined by how we handle those trials, what we chose to learn from them and if we chose to grow and become more than we were.

"Thank you Heavenly Father!
Thank you for this day.
Thank you for 25 weeks without a seizure."



mombipolar613 said...

Hi. We had a kid on the keto diet a very long time ago. She's now 17. your son is darling and has been through so much. This is all very hard, but you are an amazing mom from what I have been reading.
Jan, mom to a kid who had infantile spasms

Fawn said...

Amen, Cathy!

We're all home now. Let's try to connect this week! I've got band practice again tonight, but maybe another evening or naptime. I'm on Pacific Time, too, so that makes things convenient. :)


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