Thursday, January 17, 2008

My KetoKid

This is my KetoKid Noah!! Welcome to our blog about the Ketogenic Diet. I decided to start this blog in hopes that we can help other people with their KetoKids. I'll be posting diet suggestions; food we like, don't like, tricks for getting KetoKids to eat and anything else about the Keto Journey. I'm hoping blog readers w/KetoKids will input helpful ideas/hints and questions too. Support is key to making this diet work!! We couldn't have done it without our dear friends Kirstin & John & their KetoKid - Nikko! Thank you K,J, A & N!!! We love you!

Noah's story:

Currently 38 weeks seizure free on the Ketogenic Diet!!

Noah will be 5 yrs. old next month. He has a genetic form of epilepsy known as GEFS+ (Generalized Epilepsy Febrile Seizures Plus). His first seizure occured at 6 months. He has suffered weekly seizures on average and more often when ill. Most are tonic clonic with some complex partial as well. We guestimate around 200 seizures over the past 4 1/2 yrs. He has failed 4 anti-epileptic drugs and suffered through some serious side effects during those drug times. Noah's longest seizure lasted 3 hours. He has been hospitalized too many times to count, placed in the ICU many many times and usually suffocates on his saliva during seizures. We have come extremely close to losing our little guy many times. He is currently on Topamax although we aren't sure of its benefit at this point. But as most Keto parents know, we aren't removing the med currently because we are 38 weeks seizure free on 1/17/08 with the Ketogenic Diet. Why rock the boat now? Right?

Noah began the Keto Diet on 1/9/07. Under excellent supervision, we started this Keto Journey. During the first 3 months of the diet we "fine tuned" things a ton. Noah began at a 3:1 ratio w/1400 calories. After many adjustments, we settled in April at a 4:1 ratio & 1000 calories per day. April 27th was his last seizure.

We've had a few adjustments due to growth but he is currently at a 4:1 ratio w/1250 calories divided between 5 meals per day. He loves his diet! We love his diet! It means he is alive, happy, laughing and beginning Kindergarten in the fall in a regular classroom.

We're blessed to have him in our family. We are grateful to our God for bringing us to this diet. Grateful that it has helped. We hope to serve other families in their Keto Journey as a support, a listening ear and an idea board with this blog.

Thanks for reading!!
I love my Keto Kid!!



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